A Hopeful Future for Rare Disease in Canada

Following this month’s Rare Disease Day, join Canada 2020 for an event bringing together industry experts, policy makers, and patient advocates to discuss Canada’s rare disease drug strategy, and how best to plan for the future.

Click here to view the post event review.

Click here to download the agenda.

The upcoming year could be a momentous one for Canadians impacted by rare diseases. In 2019, the Government of Canada committed to developing a National Strategy for Drugs for Rare Diseases, with an initial commitment of $1 billion over two years beginning in 2022-23. This presents a real opportunity for Canadian patients who have struggled to get access to affordable treatment.

Following this month’s Rare Disease Day, join Canada 2020 for an event bringing together industry experts, policy makers, and patient advocates to discuss Canada’s rare disease drug strategy, and how best to plan for the future.

In partnership with

Takeda Logo Transparent

Featured Participants

  • Dr. Aneal Khan
    Pediatrician and Medical Geneticist, M.A.G.I.C. Clinic Ltd. (Metabolics and Genetics in Canada) in Calgary and Vancouver, Adjunct Professor of Pediatrics, University of Calgary Cumming School of Medicine, Metabolic Consultant, Saskatchewan Health Authority Bio
  • Dr. Michelle Mujoomdar
    Director, Specialty Pharmaceuticals, Health Canada Bio
  • Dr. Stephen Betschel
    Departmental Division Director of Clinical Immunology, Department of Medicine, University of Toronto Bio
  • Durhane Wong-Rieger
    President CEO, Canadian Organization for Rare Disorders, Chair, Consumer Advocare Network, President & CEO, Institute for Optimizing Health Outcomes, Chair, Canadian Heart Patient Alliance Bio
  • Francis Drouin
    Member of Parliament for Glengarry—Prescott—Russell, Parliamentary Secretary to the Minister of Agriculture and Agri-Food Bio
  • Jo De Cock
    Senior Adviser, National Institute of Health and Disability Insurance (INAMI-RIZIV) Bio
  • Marcel Saulnier
    Associate, Santis Health Bio
  • Michelle Boudreau
    Executive Director, Office of Pharmaceutical Management Strategies, Health Canada Bio
  • Rute Fernandes
    Executive Director, Takeda Canada Bio
  • Suzanne McGurn
    President and Chief Executive Officer, CADTH Bio
  • Whitney Goulstone
    Executive Director, Canadian Immunodeficiencies Patient Organization Bio